Event Summary: July 2025 Support Meeting for Shared Interests
Parkinson's NSW Offers Variety of Support for Patients and Carers
Parkinson's NSW is committed to providing support for individuals living with Parkinson's disease and their caregivers. They offer a range of educational sessions, support groups, and programs designed to help manage the challenges associated with the condition.
One of the educational sessions offered by Parkinson's NSW is the Newly Diagnosed Seminar, a half-day program designed for individuals diagnosed within the last two years and their carers. This seminar covers a wide range of topics, including medication management, speech and swallowing exercises, physical exercise for fitness and mobility, psychological support, and information about Parkinson’s support groups themselves. Registration for this event is essential and can be done through their booking platform. Attendees are asked to provide full details and dietary requirements, if any.
In addition to educational sessions, Parkinson's NSW also offers ongoing support groups. While specific online support group schedules are not explicitly given in the search results, they encourage participation in support groups and provide information about them during these seminars. For detailed, current information about ongoing online support groups, including schedules, topics, and registration, the best course is to contact Parkinson's NSW directly at 1800 644 189.
Among the support groups offered by Parkinson's NSW are the DBS and Advanced Therapies meetings, which are quarterly meetings for individuals considering or who have undergone Deep Brain Stimulation (DBS) or advanced therapies like Apomorphine or Duadopa. These meetings are facilitated by health professionals and recorded, but the recordings are shared only with people who register for the meetings.
Another support group is the Carers Chat, held monthly, exclusive for carers/spouses of someone living with Parkinson's, facilitated by Parkinson's NSW counsellors, and not recorded. Topics covered in these meetings have included empathy burnout, Carer Gateway services, panic attacks, journalling, resilience, and mindfulness.
For those living with Parkinson's who are under the age of 65 years, the Early/Young Onset meeting is available quarterly. This meeting presents various topics by health and allied health professionals, with discussion and Q&A, and is recorded but shared only with people who register for the meetings. It is important to note that this meeting is not open to the general public, but only to those who register for the meetings.
The Let's Talk Parkinson's meetings are not attended by people under the age of 65 years, apart from the Early/Young Onset meeting. These meetings are held every 2 months, presenting various topics by health professionals, recorded and added to the Living Well with Parkinson's library on YouTube, with discussion and Q&A.
In July, the support groups that were visited were in Taree, Nowra, and Chatswood. However, it is important to note that the Let's Talk Parkinson's and Carers Chat meetings are not part of the upcoming support group visits, which are scheduled in Murwillumbah, Narrabri, Macarthur, and Orange.
For those interested in joining any of the support groups, including the DBS and Advanced Therapies meetings, you can reach out to the support group team at supportgroups@our website.
In summary, Parkinson’s NSW runs educational sessions like the Newly Diagnosed Seminar covering broad Parkinson's-related topics. Registration for these events is done online, with attendee details and dietary needs requested. Ongoing support groups are mentioned generally but require direct inquiry for schedules and registration. To get the latest details on online support groups, contact Parkinson's NSW on their helpline 1800 644 189. No detailed listings or direct online registration links for recurring online support groups were found in the search results provided.
- To complement the educational sessions, Parkinson's NSW offers various ongoing support groups, such as the DBS and Advanced Therapies meetings, Carers Chat, Early/Young Onset support group, and Let's Talk Parkinson's.
- Topics covered in the support groups include mental health, health-and-wellness, and fitness-and-exercise, with sessions like empathy burnout, Carer Gateway services, panic attacks, journalling, resilience, mindfulness, speech and swallowing exercises, and physical exercise for fitness and mobility.
- The support groups are designed to provide psychological support, nutritional information, and guidance on managing the challenges associated with Parkinson's disease, ensuring comprehensive care for individuals living with the condition and their caregivers.
